We’ve had lots of inquiries about how Harper is adjusting to home life, so I decided to post a “home update.” We finally got home Wednesday around dinner time… It took a while to get all of the paperwork taken care of! Harper has had an amazing couple of days so far. She still has her evening meltdowns, but they are much shorter than they were in the hospital, and she spends the rest of the day smiling and sleeping. She loves sprawling out without tubes and wires, and she really loves watching her big sisters (and they seem pretty taken with her, as well).
As far as her health is concerned, Harper is doing just fine. We had our first visit with the pediatrician today, and we will be seeing them twice a week for now to monitor her head circumference and her weight. Today her weight was down and her head size was up, but that could easily be because of different scales and different people measuring.
In addition to those appointments, we also have evaluations set up with an occupational therapist, a physical therapist, and early intervention services, as well as follow-up clinics both at Duke and at New Hanover. Needless to say, with all of those appointments plus keeping up with all of her meds and tracking her feeding, we are busier than we ever dreamed possible! And that’s not to mention keeping up with our 4-year old (who is sick this week) and our almost-9-year old (who is finishing up third grade and has an upcoming birthday to celebrate!). But, this journey with Harper has made us all the more aware of what a blessing all this craziness is… And knowing that every appointment we have gives another opportunity for God to be glorified- every medical professional looking at her story readily admits that Harper is a living, breathing miracle that no medical textbook can explain!
Thanks for still taking the time to follow Harper’s progress, and, as always, for praying!