I have procrastinated with writing this. Even now as I type, my fingers are slow-moving and the words just don’t seem to be flowing.

Nothing is working.

That’s the bottom line of every report we get these days. First was the neuropsych evaluation, which showed better attention but not better cognitive function or memory. Then we had the EEG report which showed no improvement at all despite the new treatment and loads of medications. Her brain is still constantly misfiring. And the casts Harper has been wearing for the past month to help muscle tone and range of motion have been ineffective this time. We’ve had massive mood swings and more and more spells of being dazed and confused, likely related to seizure activity or possible absence seizures. Her body continues to grow but her mind doesn’t keep up, and it becomes harder and harder to find a place where she fits.

Nothing is working.

Yet we know GOD is still working.

I was reminded of that truth just a few days ago. Harper urgently told me she needed to tell me something, something that was going to amaze me and I would love it. (In moments like these, she tends to get very animated and enthusiastic). Of course, I was all ears- who doesn’t want to hear something amazing?

She proceeded to tell me that she had been sitting in her room by herself and was just talking to God, telling Him “all the things.” She told me she was sitting down on the floor (of course she had to describe the exact spot on the floor to me in great detail) and that God told her, “Get up off the floor, Harper, and go tell your testimony.”

She was so excited, talking circles around me, explaining every detail to me, and finally said, “Mom, isn’t that amazing? God has given me a testimony!”

Yes, He has.

I don’t pretend for a second to have any of this figured out. We have prayed over this girl for over ten years now. We have traveled the country to get her the best doctors we can find. We go to dozens upon dozens of appointments a month to try whatever may help. We have gone through countless medications and treatments that have let us down time and time again.

But God hasn’t let us down. He has continued to orchestrate every detail of her life, leading us to new opportunities when the road seems to end, pulling us out of the pit of despair when the reports are once again bleak, and reminding us that our circumstances do not change His goodness. He pushes us to “get up off the floor and go tell.” He is writing Harper’s story as only He can do, and she never doubts His goodness.

We appreciate your prayers as we are moving forward with new treatments and medications, but as we enter this week of thanksgiving, we ask that you not just offer prayers of petition on Harper’s behalf, but also prayers of praise for all that He has done, is doing, and will continue to do… He is GOOD.

“I will extol the LORD at all times; His praise will always be on my lips. I will glory in the LORD; let the afflicted hear and rejoice. Glorify the LORD with me; let us exalt His name forever.”
-Psalm 34:1-3