Learning to be a mom

I have this ugly tendency to spew my emotions on Facebook.  Not all the time, granted, but on those days when mommyhood is stressing me out and I feel overwhelmed by the demands of diapers and feeding and schoolwork and sibling rivalry and tantrums… I feel this need to release some pressure in silly posts on Facebook, and I find great encouragement when other moms out there validate my feelings!

Today was one of those days.  I looked at the clock and realized that I had been in my kitchen for over two hours.  That’s right- the kitchen.  No other room in my house, not even the bathroom.  Between preparing breakfast for my two older girls and making bottles and baby food for my little, then dishes and cleaning counter tops and meal planning for the next week and mopping sticky orange juice from the floor (oh yea, like I said, one of those days), my morning was gone.  And as I stood there in my kitchen looking at the laundry mountain in the next room and listening to the baby cry at me from her high chair and the sounds of the monkeys pulling hair and calling names in living room, I had a momentary meltdown.  I realized that this stay-at-home mom gig is HARD.  I realized that homeschooling is HARD.  And I realized that the expectations that I have for what my children should be and what my home should be and what I should be are HARD.

So, in the midst of the chaos that is life being lived in this home, I sat down and had myself a good think.  And this is what I came up with… Lessons I have learned about being a full-time, homeschooling mom to three.

1. There are no “breaks.”  Now, I complained about the lack of “breaks” I had when I was teaching.  And, granted, they were few and far between.  But, wow, how my definition of a break has changed!  Most days, my break is running to the bathroom and locking the door as fast as I can so that they (those little munchkins that have invaded my home) cannot find me.  Well, actually, they find me, but they can’t get to me if I lock the door fast enough!  (However, that does not stop them from trying to break the door down, wiggling their fingers at me under the door, and yelling their requests at me through the closed door). And when they are finally sleeping for the night (an ordeal in and of itself), I’m faced with all of the unfinished business of the day (laundry, housekeeping, showering, laundry, paying bills, laundry…)

2. My house will NEVER be clean.  Because somehow, as soon as one room is clean, the other six rooms of the house have been devastated by a massive tornado disguised in the bodies of three cute little girls.  It is a never-ending cycle of destruction, and I am learning to embrace the fact that our house is lived in.  It may frighten some (most) people to see the clutter and mess that we live in, but it is a sign that my children are alive and healthy and creative and enjoying the gifts that God has given them… and that Mom and Dad are in there enjoying their three little God-given gifts as well.

3. My grocery budget is not large enough.  And I’m not sure that it will ever be.  So, add couponing and meal planning (as in all three meals and snacks in between) to my to-do list!

4. I spend the bulk of my day in the kitchen as life seems to revolve around meals and snacks and cleaning up in between.  Apparently little girls eat way more than most grown adults, and my girls eat like wild animals (and spill things left and right as they are graced with their mother’s lack of grace).  Fortunately, despite my small kitchen, we have a nice, open floor plan so that I can still see most of the house from the kitchen sink!

5. Comparison is the thief of joy.  I cannot spend my days looking at my messy life and comparing it to what I think I know about another person. I’ve done it time and time again, and it always leaves me disappointed and discouraged.  We don’t tend to showcase our chaos… I must not compare my lows with someone else’s highs!  And I have to accept that what works for one family does not always work for another- my focus must be on God’s plan for my family in this season of life.

6. I am blessed.  This one came to me as I watched my sweet little miracle baby working with her therapist today.  For a moment, the big girls were quietly working in their rooms, the living room was semi-clean, and I felt a rush of warmth come over me as I watched the therapist hold my girl in her arms, loving on her and celebrating her triumphs with me.

Harper’s face lit up with a smile, and I was reminded that my role as a mommy is challenging and demanding, but it is the greatest, most valuable, rewarding, fulfilling, amazing job that I could have, and I am beyond blessed that God has entrusted these three children to me.  I’m learning as I go, but thankfully God has enough grace to cover my mistakes and mishaps, and, at the end of the day, no matter how much love I feel for my loves, He loves me (and them) even more.

Another all clear!

As traumatic as this day was on my mommy heart, all ended well.  It was a long two and a half hour wait in the waiting room as my baby girl was in the care of the doctors once again, but she handled it all like a champ!  She is very cranky as she’s fighting the side effects of the anesthesia, but the results were great.

Harper’s growth is right on target- 19 pounds, 27 1/2 inches long, and a stable head circumference of 46 1/2 centimeters.  Her MRI was also stable, and even showed a slight improvement.  No drastic changes, but her ventricles seem to have gone down ever so slightly and are evening out.

So, the verdict is that God has shown off once again.  Harper is amazingly perfect and so very tough- God’s hand is all over this baby!  Even after the events of the past two days, she was smiling and babbling and going with the flow.  As long as no problems arise we do not have to see Duke again for a whole six months!  We will follow up with all departments at that point, but no major tests or scans, just check-ups.  Then, in a year, we will do the scans again.

All I can say is praise God from whom all blessings flow!  There truly are no adequate words when it comes to the miracle He has given us.

Revisiting

With a squirt of soap, a floodgate of emotions burst.  That scent of antimicrobial hand cleaner in the bathroom of Duke University Hospital hit my nose and sent me reeling back to the days of scrubbing up to my elbows until my skin was raw… The days of asking for permission to see my own baby girl, of donning a worn hospital gown over my own clothes to protect her from germs, of watching her vitals on the monitors and feeling my heart drop with every alarm, of maneuvering around breathing tubes and drains and IV lines just to touch my bundle of joy.  Remembering rushing to the hospital in the early morning to sit by her isolette and listen to the doctors discuss my child with words and terms I never dreamed of understanding and then having to walk away from her at night, trusting her life in the hands of strangers that were really angels dressed in scrubs.

I pulled myself together in time to sit in the waiting room and hear the sound of the helicopter coming in for a landing- that same sound that carried my newborn baby hours away from me on her birthday.  I remembered so vividly trying to hold my precious girl so tightly in my arms as the life flight pilots gently pried her away from me, watching them strap her in that plastic box on a stretcher and wheel her down the hall, and laying alone in my own hospital bed as that awful sound of the helicopter got louder, then faded into the distance.

So many other heart-wrenching memories flooded my mind today, triggered by the smallest things… Watching the nurse wrap the pulse ox around Harper’s toe, that red light glowing under the tape; walking to the ICN window to speak to the folks who were such a blessing to us; seeing those weary families trying to find some rest in the waiting room; an infant being wheeled down the hall in a plastic box of a crib, covered completely by a blanket to protect her from stares; getting our red plastic armbands at the Ronald McDonald House; being away from my big girls and leaving them home with family… It has made for an emotionally draining evening for sure.

Tomorrow will be even more trying as this mommy prepares to turn her baby over to the doctors again.  While it is just for an MRI, it is causing me much anxiety.  Harper will not be allowed to have any food or bottles after midnight, as she will be under general anesthesia tomorrow.  We will take her to pre-op around 9:00 in the morning, and she will have to have IVs put in.  She is part of a special study being done here at Duke on a medication they use, which means she will also have to have blood drawn and have an EKG before and after her tests.  This will be the first time since bringing her home that we have to leave her with the doctors, and it is already breaking my heart!

Her scan is scheduled for 11:00, and then she will go to recovery until the meds wear off.  We will then meet with Dr. Fuchs, her neurosurgeon, around 3:00 to discuss the results.  On her last scan she still showed some areas of fluid, brain damage, and cysts, but it was all stable.  We are praying for miraculous results tomorrow.  She is an amazing little girl and shows no signs of brain trouble at all, so we know God is taking good care of her!  Thank you all for praying with our family tonight and tomorrow… God hears and answers those prayers, and we are so grateful!

Victory in Jesus

Today we worshipped with the old familiar hymn, “Victory in Jesus.”  It’s on my list of favorites as I always hear my granddaddy singing it with all his might.  But today the second verse hit me in a new way and brought me to tears…

“I heard about His healing

Of His cleansing power revealing,

How He made the lame to walk again

And caused the blind to see.

And then I cried, “Dear Jesus,

Come and heal my broken spirit.”

And somehow Jesus came and brought

To me the victory…”

I don’t always take hold of the victorious life He has promised, but somehow He still gives it freely.  As we sang this verse, I was struck by how blessed I am to have not only heard about His healing, but to have witnessed it firsthand!  I have struggled to understand many things about this crazy life over the past couple of years, and I still can’t make sense of most of it.  But I know God gave me Harper for a reason.  He has used her precious life to remind me of Who is in control… To restore my faith, show me the meaning of hope, and to heal my broken spirit.  I still don’t understand all the what’s and why’s, but I’ve been reminded of the Who.  And as I lay down tonight with a head full of thoughts and a heart full of emotions, I pray that I find rest in that Who, that I claim the victory He has promised, and that I never cease to give Him praise.

Too, too good…

Today was a big check-up day for Harper at the Nunnelee Clinic at the hospital here in Wilmington.  It was technically a 6-month developmental check, although she’ll be 7 months old tomorrow (hard to believe).  She was able to show off today for the psychologist, the dietician, the physical therapist, and Dr. Digiuseppe (the doctor who attended to Harper on her birth day and sent her on to Duke).  And show off she did!  They tested her in all areas of development, and across the board she measured in the 7-month range… right on target!  Each person that visited told us how amazing she is, and Dr. D just shook his head and said she is “too, too good.”  One nurse said that it was unbelievable to see Harper in person after “knowing” her through her chart and records… it doesn’t add up in the medical world!

Harper is currently weighing 18 pounds, and we are finally able to make adjustments to her formula.  We are backing down to a regular calorie formula, and transitioning from Elecare to Nutramigen.  We don’t have to go back to the clinic until her first birthday, and they expect her to be discharged from her therapies at that time!  Harper is almost sitting on her own, rolls front to back and back to front on her own (but only on her own terms!), lifts her head, tracks objects, crosses midline, uses both sides of her body, picks up small objects, makes vowel and consonant sounds… I could go on and on about all of the amazing things she does, but you get the point!  It is such a joy to truly have reason to celebrate each of these milestones with her… I tended to take these for granted with my first two loves, but now we can relish in the fact that life is a miracle.  What we think of as “normal” is actually a gift of grace, and we’re so happy that God has taught us to recognize Him in the normal, every day accomplishments of our children.  Sometimes our experience with Harper has seemed like a dream, and we can’t understand why God chose us to be the parents of such a beautiful miracle, but we are ever so grateful for this gift!  The doctor said Harper is “too, too good,” but we say God is too, too good!

Developmental milestones

I’ve waited all day to type this post, but my sweet little miracle kept me fairly busy today!  This morning Harper had her six-month well-check with her pediatrician, which of course meant the dreaded vaccinations.  So, we spent most of the afternoon snuggling and resting in mommy’s arms… Which was perfectly okay with mommy!  I know all too well how quickly these days of wanting to be held and cuddled will pass, and I spent many days longing to hold and cuddle my girl, so I am perfectly content to spoil her rotten.

Anyway, back to the well-check… Harper is up to almost 17 pounds, which keeps her in the 75th percentile for weight.  This was a huge relief because her appetite has decreased quite a bit over the past few weeks… But apparently that isn’t affecting her weight.  She is 27 1/2 inches long, putting her in the 95th percentile for length (still not sure where that gene came from!).  The best news in her measurements was her head circumference- still off the charts, but no increase!  She’s maintaining right around 45 cm, so no apparent fluid increase in the past couple of months…. Woo-hoo!!

However, the news that brought tears to this momma’s eyes was that the doctor could find nothing developmentally wrong.  Harper passed all of the major developmental milestones they look for at six months.  Over the past few weeks, I’ve spent a lot of time remembering those initial days of learning of Harper’s diagnosis.  I remember sitting in the triage room of the hospital and the doctor telling us with tears in her eyes that things did not look great, that there were too many unknowns about our baby’s future.  I remember the fetal specialist sitting with us and a counselor in her office informing us that she just didn’t know if our baby would make it or not, and that even if she survived, her quality of life would be in question.  And then the specialist at Duke telling us that while she felt confident that Harper would survive, she, too, was uncertain about what her future would hold in terms of her brain function.

But our girl did survive.  She came into this world fighting, ready to show us all that God’s plans cannot be predicted or explained.  She beat the odds, even when surgery went wrong.  She kept fighting even when her little heart was weak, when she couldn’t breathe on her own, when she became drug-dependent, when eating was a challenge… When her life seemed impossible, she reminded us that nothing is impossible for God.

And now, at six months, not only is she still alive, but she is thriving.  She is growing and developing and doing all the “normal” things no one ever thought she would do.  She’s curious and determined and full of joy… She is an undeserved blessing, and I pray that I never cease to give praise to the One whose plans for her far exceed anything I could dream.

Home school Day #1

We survived our very first day of home school today!  It was a busy, busy day… I was slightly over-zealous and had several crafty projects for us to do for the first day of school, so school took a pretty long time!  Day one in a nutshell was a learning experience… for Mom.  I realized that my organization system didn’t really work well for me, that it will take some time for my girls to see this as school and not play school, and that a four-year old’s attention span is all of about 30-seconds at a time.  However, despite all of the glitches and mishaps, we spent an entire day together in one room with lots of laughter and talking and very little arguing and fighting.  I learned that my girls are amazing… they have a hunger for learning, they’re inquisitive, they’re eager to please, and they have very generous hearts.  There may a lot of trial and error in our upcoming days, but it’s worth every minute as we learn and grow together as a family.

Our “classroom”
All my girls ready for our first day!
Raegan came out dressed in one of her old school uniforms… go figure!
And Maddie chose to spend the entire day in her pajamas, of course!
Working hard
At the end of the day, Raegan still wanted to stay at the school table… I think she likes it!

A day at Duke

Today was Harper’s big follow-up at Duke.  She had three appointments at the children’s hospital- neurology, neurosurgery, and ENT.  We visited with neuro first, and both her neurologist and neurosurgeon were very impressed with her progress.  While her most recent MRI showed areas of brain damage, fluid retention, and cysts, it is all stable.  There is no significant bulging of the skull and developmentally she is steadily improving.  They attribute this to her young age- because she was so young when all of this damage took place, her brain was able to rewire itself to fire differently, causing less delay thus far.

From the ENT… Harper’s laryngomalacia is continuing to improve and we barely hear the noisy breathing anymore.  Her reflux is still acting up, so we are continuing the reflux meds and trying some cereal.  The ENT will continue to watch her, keeping an eye on her breathing, her reflux, and her speech patterns as she gets older.

Over the next six weeks we will start weaning Harper off of her seizure medicine.  She has been on it all of her life so far, so it’s a little nerve-racking on our end as we watch to see if she will have an issue with seizures.  We go back to Duke in three months to follow up with the ENT again, and to have an MRI under sedation.  In the meantime, we will just continue to watch her and continue working with her therapists at home.

The overall summary- God is good and our girl is a miracle that no doctor or medical book can explain.  Yes, there are still issues and uncertainties, and as a parent nothing is harder than holding your baby and not knowing what could happen with her at any given time.  But she is amazingly ahead of what her doctors ever hoped for her, and we know we have been blessed far more than we deserve.  So for now, we will continue to watch and observe and monitor, and pray that God continues with the miracles!

Things I want to remember about our past two weeks

1. We officially made a 100% commitment to home school the girls this year (4th grade for Raegan, PreK for Maddie).  We submitted our application and received approval, started setting up our “class room,” and ordered curriculum.  We’ve received great confirmation that this is the right decision for our family this year, yet I’m still a nervous wreck!  Praying that I don’t ruin my daughter’s educational future….

2. The big girls spent a couple of nights getting spoiled at Mimi’s house while Harper and I visited Kirby in Fayetteville while he finished up his seasonal training for the Air Force.  It was Harper’s first hotel experience, and she was a perfect angel!

3.  Maddie informed me the other night that she could hear the sand.  Naturally, I had no clue what she was talking about, so I inquired further.  “Mommy, when God made me, I think He left some sand in the way back of my teeth because I can hear it.”  So precious!  (Of course, it turned out to be her tube falling out of her ear, not sand, but it was still a cute idea!)

4. Haleigh and Noah (my niece and nephew) came to spend the night early in the week, and I discovered some very important things.  First, a houseful of kids can be crazy, but lots of fun.  Second, my husband and I make a really good team when it comes to managing a houseful of kids- I am very blessed.  This man who knew absolutely nothing about children and was so uneasy around them when we started dating is amazing with them now and is the biggest help!  Lastly, that wild little Noah whom I absolutely love reminded me how very different boys are from girls.  As a mom to all girls, it was an eye-opening experience to attempt to wrangle him for an evening!

 

5.  My girls attended a gymnastics birthday party and I learned that they have been “blessed” with their mother’s lack of coordination and athletic ability.  It’s a good things they’re cute and smart.

6.  We discovered the Early Jazz station on Pandora.  Enough said.

7.  Maddie apparently has a major aversion to peas (and quite a dramatic flair)…

The many faces of eating A pea.

 and #8… No matter what happens or how crazy life gets or how impossible things seem (from home schooling to bribing children to eat peas), it’s all about HIM.  I’m not able to accomplish much in my own power, but through His strength I can conquer the world….

      Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.

-Ephesians 3:20-21

I can do all things through Christ who strengthens me.

-Philippians 4:13

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.

-2 Corinthians 12:9

 Jesus looked at them and said, “With man this is impossible, but with God all things are possible.”

-Matthew 19:26

Wealth and honor come from you; you are the ruler of all things.  In your hands are strength and power to exalt and give strength to all.

-I Chronicles 29:12

You, God, are awesome in your sanctuary;
    the God of Israel gives power and strength to his people.

-Psalms 68:35

  

“What next?” or “What now?”

Okay, I’m going to just be very open and throw my sin out there… I am a worrier.  And not just the kind of worry over huge things or the mild-fret kind of worry, but a full-blown, control-freak, big-time sin kind of worry.  Given the past year of my life, you would think that I would have learned a lesson or two by now, but apparently I’m a slow learner because here lately worry has once again taken a firm grip on my heart.  Now granted, worry has disguised itself… I give it names like “considering” and “contemplating” and “wondering”.  But I made a discovery today- when I get serious and really take it to the Lord, He reveals it for what it is.

We all know we face an unknown future (Ecclesiastes 9:12… “Moreover, no man knows when his hour will come…”).  Yet for some reason the unknown has been plaguing me.  I’ve been driving myself (and anyone close to me) crazy with wanting to know what lies ahead for our family.  I want to know what Harper’s future will look like, I want to know what God has in store for my daughters’ education, I want to know what plans He has for our careers, and I want to know what He is preparing us for, because I feel that He has done some serious pruning in our lives over the past year or so.  I want to know!

But I’m not supposed to know, at least not right now.  I’ve been obsessing over wanting to know more than I need to know.  It’s okay to seek Him out and to seek His will, but sometimes we have to accept that what He has revealed right now is all that we need for the time being.  He wants us to desire more of Him, to desire wisdom and discernment, but we are not going to be omniscient.  Only He is all-knowing.  In my seeking and searching, I have been striving to know it all, but He knows exactly what I can handle knowing in this moment.  I need to rest in knowing that He knows all, and I know Him, and that’s enough.

So, I’m trying a different approach.  Instead of constantly looking forward and asking, “What next?” I am going to strive to look around and ask, “What now?”  Yes, I still like to plan ahead and be as prepared as I can be, but instead of focusing on an unknown future, I need to focus on the moment and place that I’m in.  What is He calling me to do in this moment, in this place?  How can I serve here and now?  Am I being the influence I need to be right now on the people surrounding me, or am I always looking for something else, someone else, somewhere else?  I don’t want to miss the opportunities that He’s given me now because I’m so worried about what is to come, on the “what next.”  He’ll tell me “what next” when I need to know.  In the meantime, my question needs to be, “What now?”