It’s Harper’s three-week birthday today! In three weeks of life our girl has endured three brain surgeries (the first of which nearly took her from us), numerous c/t scans and X-rays, countless procedures and tubes and needles, feeding tubes, ventilators, multiple blood and plasma transfusions, countless medications, and visits from nurses, doctors, surgeons, therapists, and anyone else here at Duke (or so it feels, anyway). Yet through it all, she has managed to make us laugh and smile and has won the hearts of many special nurses and doctors who come in regularly just to visit our little miracle. God is already using this angel in mighty ways!
Today Harper was supposed to have a visit from the speech therapist to start bottle feeds, but she continued to have issues with vomiting after her feeds so they had to make some adjustments to her feeding schedule instead to see how she tolerates smaller amounts more frequently. She has started to show that feisty temper of hers and managed to rip two feeding tubes out of her nose today! She’s been taking down a little more on her morphine drip this afternoon, and this evening they increased the pressure on her EVD, bringing us a little closer to possibly having it removed. Praying that all continues smoothly overnight!