Another weekend down

Today ends our third weekend at Duke. We had a great time having all of our girls in one place again! Harper is still stable. Her EVD drainage is slowing down and her feeds have increased, but she is struggling with the morphine wean. She was very irritable and started vomiting after her feeds, so they’ve had to implement another medication to help her with the morphine withdrawal since she’s been on it for pretty much her entire life at this point. We’re looking to see improvements with that in the next few days. We got to put some of her own onesies on her this weekend, held her a few times, and Mom got to change her diaper for the first time. Other than that, we’re just waiting to see what this upcoming week will hold!

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