Well, here we are, sitting in the emergency room of Duke hospital with Harper. The very thing we have been praying to never see has started to show itself. As we know, Harper still has an enlarged ventricle full of fluid. The concern is that the fluid will continue to build and cause pressure, and one sign of that is bulging in her skull.
A couple of days ago I noticed a round, raised spot on Harper’s head near her main incision spot. I thought I was imagining things, so I gave it some time before I pointed it out to anyone. But yesterday I finally had everyone else at home take a peek at it and feel it, and we all noticed that it has gotten larger and feels very different than it did before.
So this morning Kirby gave Dr. Fuchs’ office a call and explained the situation to them. Unfortunately he won’t be doing clinical visits for the next week, so they told us that we needed to head straight to the emergency department at Duke. We loaded up and made it up here after lunch. So far we’ve been seen by two of the resident doctors here, and they are now calling neuro in to come take a look and decide what to do.
Prayers are much appreciated as we play the hurry up and wait game again! Also, a non-related prayer request… My niece Aubrey (who is just six weeks younger than Harper) has been diagnosed with A.S.D., a congenital heart defect. We don’t know much right now, but my sister is also playing the wait game as she waits for more referrals and info!